What does the word home mean to you? In 2009, I would have defined home to be a house, in a community that we chose to live in, and our family who lived in our home.

That definition changed when Tommy came back from Craig Rehabilitation Hospital. Our home was now where Tommy’s care took center stage. Since his homecoming, we have desired and have been profoundly grateful that Tommy is able to receive great care in our home; his presence in our home is essential.

However, it has been a sacrifice and a surrendering for all of us to lose our privacy and “control” over our surroundings. For example, Because Tommy requires 24-hour nursing care, we have people in our home most of the time. Imagine having a male nurse that you don’t know in your house overnight! Continue reading →